Kidney Disorders

Alexion is initiating clinical trials to evaluate Soliris for the treatment for patients with atypical Hemolytic Uremic Syndrome (aHUS). Independent investigators have started a study to evaluate Soliris in patients at high risk for transplant rejection and in patients with Dense Deposit Disease (DDD).

Atypical Hemolytic Uremic Syndrome (aHUS)

aHUS is a rare and severe inflammatory disease characterized by the hemolytic destruction of red blood cells, decreased platelets and clotting in blood vessels, particularly in the kidney and brain, often progressing to kidney failure.

Like PNH, aHUS is caused by a deficiency in normally occurring complement inhibitors. Typically, patients with aHUS have genetic mutations in one of several complement inhibitor proteins, leading to uncontrolled complement activation. This excessive complement activation may in turn contribute to severe inflammation of blood vessels and blood clotting through the activation of white blood cells, platelets, and the cell lining of blood vessels.34 The prognosis for patients with aHUS is poor. Approximately 70% of patients with the most common mutation experience poor kidney function, kidney dialysis, or death within a year of the first clinical episode.35 Following kidney transplantation, recurrent aHUS causes kidney transplant failure in approximately 62% - 88% of patients.36

In January 2009, the New England Journal of Medicine published two separate case reports examining the investigational use of Soliris in patients with aHUS.37,38 In both cases, physicians observed a significant reduction in the destruction of red blood cells, reduced platelet destruction and improved kidney function following Soliris therapy.

Alexion is initiating four prospective, open-label clinical studies of eculizumab as a treatment for patients with aHUS in North America and multiple European countries. These comprise two studies of patients who are plasma-therapy sensitive (one in adults and one in adolescents) and two studies of patients who are plasma therapy resistant (one in adults and one in adolescents).

High Risk Kidney Transplantation

Patients undergoing kidney transplantation may experience severe antibody-mediated rejection (AMR) in the early post-transplant period, characterized by the acute onset of kidney failure and rapid progression to destruction of the transplanted kidney.

AMR results when antibodies in the transplant recipient vigorously attack the blood vessels of the donated kidney. During severe AMR, these donor specific antibodies (DSA) bind to the blood vessel lining of the donor organ and initiate activation of the complement cascade, resulting in severe blood vessel inflammation and clotting. Administration of a C5 Inhibitor in animal models of AMR inhibits complement activation, tissue damage and transplant rejection.9

In May of 2008, an investigator-initiated clinical trial commenced to evaluate Soliris in presensitized renal transplant patients. This trial is currently enrolling patients. Interim results of this trial were presented at the American Transplant Congress in June 2009.

Dense Deposit Disease (DDD)

DDD, also called Type II membrano-proliferative glomerulonephritis, is a rare and severe kidney disease characterized by genetic mutations in complement inhibitor genes that can lead to sustained complement activation and inflammation. In most cases, the disease evolves into chronic renal failure, requiring dialysis and renal transplantation. Independent physicians are evaluating the use of Soliris in patients with DDD.